Saturday, October 31, 2009
I am sitting here alone. Kay and Clay have left for birthdays and Halloween festivities. It is Ella's fourth birthday tomorrow (Clay's daughter), and they had a party planned. Clay will be back tomorrow. Kristie's boys have no parents to trick-or-treat with tonight - Rich is still very sick with the swine flu and Kristie is here - so Caitlin and her boyfriend Mario are getting those honors. They just took Dad out to have another CAT scan. He has been hooked up to an EEG monitor almost all day. They didn't want to disconnect it long enough to have an MRI done (about 45 minutes), so today it's the CT scan (5 minutes). The CT scan should tell us if he has had any brain bleeds or a stroke. It will not tell us about oxygen-deprived brain injuries. They plan on doing the MRI tomorrow. One big problem we have with the MRI is keeping Dad perfectly still during the procedure. He has had many seizures - so they will have to run the MRI after he has been given medicine to keep him still. The problems with all this seizure medication is that it is sedating, and that is the last thing we want - he needs to wake up.
They have just brought him back in from the CT scan, and his seizures have started again. The Lorazepam has been given twice today, and it stopped them for about 3 hours. The doctors have decided not to give him any more Lorazepam for now. It can cause too much drowsiness, and they don't want to give him anything sedating. I guess the seizures are going to get worse tonight.
We have prayed as a family that God take care of Daddy in whatever way He deems best - but if God would, that He work fast. I know God is in control, and that Dad is right where he is supposed to be. I don't know WHY Dad is supposed to be here, but I know he is here for a reason.
God bless,
Love,
Renee
Dad has a fever of 102 - they think that this could be caused by pneumonia he could have gotten when they intubated him. They don't KNOW if it is pneumonia, but they are treating him with antibiotics for it anyway. The fever could also be caused by the heart damage.
Dad has responded only once when a very deep voiced doctor patted on him and spoke loudly to him. He opened his eyes and looked toward the doctor. He closed his eyes again. They did notice that his blood pressure spiked up when the doctor got a response from Dad. This is not good either, because an increase in blood pressure can cause Dad's aneurism to burst. Now we are not supposed to try to get him to wake up, so they can keep his blood pressure down.
The doctors are leaning more towards a heart attack as the cause of his problem, only because his enzymes were still elevated yesterday afternoon. They could be elevated due to a heart attack or due to the CPR that he had. They said the cardiac arrest could have been caused by a heart attack, or his breathing could have stopped and caused his heart attack, which led to cardiac arrest. Bottom line: who knows? We will probably never know.
They are still saying that it may be 24 to 48 hours before we have any idea what damage has been done. He is still in a coma, and there is definitely heart muscle damage, and new brain damage due to the cardiac arrest. We have been told that we need to decide what measures we are going to take for Dad if he doesn't wake up, or if he has minimum brain function left after he does wake up. Our family is functioning as best we can. The past 36 hours have been surreal. I don't know how we have gotten to this point. The neurological doctors are telling us that it is just too early to tell what will happen, and that it is possible that he might wake up. They follow that statement with, "You need to make some decisions among yourselves as to the care of your father." The first time I heard that statement, I literally thought my knees would buckle. The past two months watching my Dad function with vast confusion has been so difficult. That pales in comparision to watching your Dad seize every 4 seconds while in a coma, begging him to just squeeze your hand or open his eyes, and getting no reaction.
Gregory has read the EEG, and he said that honestly, the EEG looks better than the neurological exam shows. The EEG shows moderate brain damage. They have ordered an MRI, and the results will be key in deciding how to make the decisions that face us now. It will show how much brain damage was done before the cardiac arrest and the amount done after the cardiac arrest. It will show if there have been any brain bleeds, which is apparently something that can happen with this type of tumor.
Well, I started writing this blog two hours ago, and between doctor visits, phone calls and company, the news keeps changing. He received his seizure medicine at 10:25, and the seizures stopped. The Lorazepam is supposed to last for 2 hours and the Keppra for 12 hours. It is 1:40 and the seizures have started again, very small, but still there. He is still having the EEG, and we can't start the MRI until it's finished. The seizure doctors have told us that we need to decide just how many different tiers of medicine we are willing to give him. If the usual medicine doesn't stop them, the last choice will be putting him into a Pentobarb Coma. This puts him into a medically induced coma for 7 days. During that time, we will have no idea of his brain function. If we have to cross that bridge, we greatly increase his hospitalization time and we won't have any idea of his brain function until much later.
The bottom line is: Dad is very critical, he is still in a coma, he is having seizures, his heart is damaged, his brain has more damage (but no idea how much), he has a fever of 102 and he is totally unresponsive. Things could be worse, but I don't see how they could be much worse. We have placed Dad in God's hands, and we are praying for peace, strength and no suffering for Dad, and strength for us. I am ever mindful that God does not place more burdens on us than we can bear, but the weight is getting pretty heavy. I am so thankful that I am not walking this journey alone.
Thank you for all your support.
With love from our entire family to yours,
Renee
Friday, October 30, 2009
Dr. Moots said that it was conceivable that it would take 24 to 48 more hours to determine Dad's condition. He has suffered a great trauma, and it will take time for his body to get strong enough to respond. He said that it was also possible that Dad would never change from the way he is right now. We have not given up hope. My God still works miracles, and I am waiting for healing, either by bringing Dad back to us or by giving him perfect healing. The latter is not my choice, but I realize that God will do what's best for Dad, not what's best for me. It is very important to have a good quality of life, not just existing. Dad has said before that he never wants to be put in a nursing home. We have put the decisions squarely in God's hands. I think that through the day, we have accepted that none of us wants Dad to survive if he has to live like this, or even like he has been for the past two days.
If anything changes tonight, I will let you know.
Much love, and may God bless you,
Renee
If the news changes, I will let you know.
Love,
Renee
I know that last night they had to give him a lot of drugs to keep his confusion low - and to keep him from yanking out all his tubes. They gave him Zyprexa first, then later he got Haldol (both anti-psychotics), and then he had Morphine, and later they gave him another dose of Morphine. Mom asked them when they were giving him the last dose if that was too much medicine, and they told her that the doctor had ordered it. Dad had been having trouble breathing while he was sleeping, and he kept ripping off his CPAP machine, so he didn't have it on last night. If you take certain medicines, they can depress your respirations. His blood pressure was already low, and he was having trouble breathing - so it stands to reason that he just stopped breathing. I asked one of the doctors if this could be a possible cause, and he told me that, if he was a betting man, he would put his money on it. All the other doctors are saying they have no idea, and that we may never know the cause. The good news is, if it is the drugs, once they wear off, he has a greater chance of waking up. Every hour that he remains in this coma, his odds of recovery decrease.
The doctor said that he did have heart muscle damage, but they don't know how much damage. They also don't know how long he wasn't breathing before they found him, but it couldn't have been more than a few minutes. We all know that lack of oxygen means brain damage; they told us that Dad already had profound brain damage and this will have added to it - so we need to be prepared for the worst. He is completely unresponsive and on a ventilator. The doctors said that it will be 24 hours before we know what we are facing, and there is a very good chance that he will not make it through the day. He is in grave condition, and they are not giving us lots of hope. They will not resuscitate him if it happens again.
Kristie and I spent an hour singing the "Larkin Top 40" hymns to him. We forgot a lot of the words, and were hoping that he would be so indignant that he would wake up and hold his ears. No such luck, but his two nurses that are stationed right outside his room told us it was beautiful :) . WE knew it was terrible. We cried through most of the songs, forgot the words to half of them, sang off-key and left out a lot - but maybe Dad can hear them, even though he isn't moving.
All of my siblings are here - Kay, Kristie and Clay. We got here at 6AM - Kevin drove Kristie and me here in record time. We will be here through the night. Only a miracle will save Dad today. It gives me comfort to know that we are not supposed to stay here on this earth - it is just a stopping point for a short time. Our goal is to spend the rest of eternity with Jesus. I know Daddy has spent his life leading people to Christ, and Jesus has a mansion waiting with Dad's name on it. I'M just not ready to lose him. Mom is numb, but at peace, knowing God is in control, and that maybe God is ready to welcome Dad to his REAL home.
We are waiting to see what God's decision will be..............
Please keep us in your prayers today. The ache is just almost unbearable.
Love,
Renee
Thursday, October 29, 2009
When I got to Dad's room, he was sitting in the chair. He was completely off the wall. I don't think he said one thing that made sense to me while I was there. He told me that he had been on TV. He said he could remember standing in front of the camera. I asked him what he wore, and he said he wore exactly what he had on then (a gown and bright yellow non-slip socks). I told Dad that the camera was probably aimed at those bright yellow socks for most of his filming time, and he told me that he definitely had on the same outfit. He was filmed at OHS in the library on the second floor, and "That is a fact." His male nurse was in the room, and Dad asked me if the police were there. He asked me if I filed a report last night. He talked of constitutional rights, and of accepting a phone call from a lawyer to help with corporate law.......and through it all, he fidgeted. I would liken it to a child with ADHD who had missed his medicine for several days, and then was forced to stay in one spot with nothing to do. He kept his eyes closed, but he picked, jerked and fidgeted constantly. Even when he was asleep, he would jerk and wake himself up every few minutes. The sheets were up and then they were down. He was also confused about who was in the room. He thought I was Clay, he thought Mom was Gregory and he was sure that Annie was in the room too. Dr. Moots told Mom that he thinks a lot of this confusion will level out. I hope his prediction comes true very soon.
When I first arrived, his blood pressure was 89/45. Between his very low blood pressure, his extreme confusion and his lab work, they decided that his system is completely out of whack. So, they stopped his Sodium Bicarbonate IV and put him on fluids strictly meant to bring his blood pressure up. When I left this afternoon, it was 109/49. Dr. Stein feels like it is going to take several days to get Dad's body back to where it needs to be, so he told them not to expect to get out of the hospital for a few more days.
He complained of a sore throat, and when they checked out his throat, they found he has thrush. I think that is a pretty common occurrence with chemo, but it is still very painful.
They are going to have to give him medicine to calm him down again tonight - I just hope that it works better tonight than it did last night.
The bad news continues for Kristie: Rich got diagnosed with the swine flu tonight. He is the oldest person who has been diagnosed with swine flu at Convenient Care (a dubious distinction at best!). The nurse told Kristie that she shouldn't see Dad for at least several weeks. She is SO upset over not seeing Dad. Kristie has a call in to her own doctor's office to see if she can get started on Tamiflu, and also if they have the same recommendations about staying away from Dad as Convenient Care does. Rich and his mom have been taking care of everything, boys and house, while Kristie has been driving back and forth. The doctor told Rich that he won't be taking care of ANYTHING for the next 7 days. They are going to have to give him some "oinkment" for treatment. Sorry Rich, that is a terrible pharmacy joke that I had to throw in there. He is truly very sick, and I hope that he feels better soon.
I am planning on going back to Nashville tomorrow, even though Mom has told me I have travelled enough this week. She told me that she always listens to me, so that I need to listen to her! I have never been a good listener. Sorry, Mom :-) !!!!!!
Love,
Renee
Wednesday, October 28, 2009
Take care,
Renee
Today has been one of Dad's worst days. Mom says that his confusion level is the worst that she has ever seen it. He asked if his mother was sitting out on the front porch in the swing (his mom has been gone for 24 years). He asked if there was a child in the car wreck. The preacher from Bethel came to visit, and Dad called him "Bud" (not his name). He also got confused about what the preacher did for a living. For the first time today, though, he got ugly with Mom. Throughout this whole illness, he got irritated sometimes, but never ugly. He told Mom that she was driving him crazy. She began to cry, and he told her that she was just on him about everything. I know he's frustrated because Mom does tell him what he needs to do, but there is no way around it. Dad is like a five year old.
He tried for a third time to pull the tube out of his port this afternoon; he was in the bathroom, and Mom was trying to stop him, but she couldn't control him. She had to pull the "Do not pull unless it's an emergency" cord, and they all came running to help. They got him back to bed and gave him a Zyprexa. This is an antipsychotic drug. She said he has slept a lot since they gave it to him. She also said that Dad was very difficult to understand today. She said that you couldn't understand most of his sentences. They are waiting for the doctor on call to come into their room, so she can talk about what's gone on today. We don't know if this is what we're supposed to expect, or if something has gone terribly awry. I called Mom on my way home from work, and she cried for most of the drive. Mom has been a rock through it all, so I KNOW how scared she is tonight. I know how scared I am tonight.
I am asking you tonight to pray specifically for the healing of Dad's mind. He so desperately needs peace right now. I can't begin to imagine what is actually going in his mind. He is so frustrated and lost right now. It is so very hard to watch this illness progress. I thought that the shrinking of the tumor would surely bring some improvement to Dad, but so far that has not been the case. Dad thinks that his memory has greatly improved, but in reality, we know that there has been little change. We are never going to give up hope. Even though right now our seas are stormy, God is still the Captain of our ship. I may not see the improvement in Dad that I desperately am longing to see, but God is not finished yet. 2 Corinthians 5:7 says WE LIVE BY FAITH, NOT BY SIGHT.
Thank you for all your continued prayers. We need them so very much.
Love,
Renee
Tuesday, October 27, 2009
The big news of the day was that Dad only got up ONCE last night to go to the bathroom, and a nurse helped him with that (you've got to love those catheters). Mom didn't get up one time (except apparently to hammer and bang cabinet doors!). Dad was really tired today, but he is hanging in there. He told me that since Mom was so effective keeping him awake hammering and banging, he has figured out how to use it during the slower moments of his sermon. When there's a lull, BANG, he will slam a door. If things don't improve, WHAM, he will hammer something. That should keep things going! He doesn't know that we have some "heavy sleepers" that sit near the back, and it will probably take more than a hammer to wake them!!!!!!!!!
He asked us if anyone was up for a fish dinner for supper. I asked him where we were going to get the fish, and he suggested Long John Silver's or Captain D's. He told us that all he had to do was get a shirt on, and he'd be ready to go. I reminded him that he had IV tubes coming out everywhere, and he told me that he could cover those with a jacket! You have to give him credit for thinking outside of the box. He was a little "edgy" today, to use Mom's phrase.
Tonight, he managed to pull the needle out of his port. They had to bring radiology up to his room to see if he had dislodged the port, and then they were going to have to fix his port. Mom had walked 20 feet down the hall to get a cup of coffee, and when she came back, the damage was done. She asked him why he had pulled it out, and he said that he didn't know that he had. He also pulled the patch off that attached his catheter to his leg, so they were going to have to repair that. I would imagine that the nurses (not to mention Mom) are ready for Dad to GO TO SLEEP!
All in all, we had a great visit. Mom opened several cards and read them out loud to Dad. They appreciate so much hearing from their friends and family. It is hard to be so far away from home. We figured today that the final round of treatment should end December 5th. We also realized that they will be spending Thanksgiving at Vanderbilt, but that week will also be the 5th and last round of chemo scheduled. He will have to stay near the hospital for the next week, and then - if all goes as planned - they can come home. Our family has much to be thankful for this coming Thanksgiving Day! God has been very good to us.
Much love,
Renee
Monday, October 26, 2009
He has been very tired today, but his sense of humor is still hanging in there. Kristie asked him today if he was tired, and he told her to ask Mom. If SHE said he was tired, then he was tired!!! Mom can't catch a break! He is also still very confused. He is still arguing that their very tiny room has 7 bathrooms. He actually counted out every single door to every single bathroom in their room while I was on the phone. He said that he was trying to set Mom straight on the number of bathrooms, and so he was having to point each door out. He also spent some time trying to open a door on the wall (according to Mom, this was a very pretty picture that he was trying to open as a door). He is going to get a catheter put in tonight, so hopefully he won't need the seven bathrooms! The catheter "should" work, at least in theory. I know how many times Mom has had to get up while he has the catheter in. I am hoping that an antibiotic to help his infection will decrease his trips to the bathroom.
I am heading to Nashville in the morning. The days are very long for them in the hospital, but I think they may seem worse during the days spent OUT of the hospital. There isn't much going on during that time. I hope that our visits help make their day just a little shorter.
Hope your day has been a wonderful one! If not, you still have time to make it a better one!!!
Love,
Renee
Sunday, October 25, 2009
Saturday, October 24, 2009
at Vanderbilt for 5 hours, and I'm not sure when we will be leaving.
The ER has been on a lockdown and police are everywhere. Someone was
shot, and the concern is that the shooter will come back and finish
the job. My loving husband gave me some caring advice: "Move away
from the door!".
Dad had some trouble during the night. One side of his stomach began
to hurt a lot. He doesn't complain about pain much, so I know it must
have been bad. They were home alone, it was 3AM and Mom didn't want
to call me at that time of the morning. She wasn't sure if she should
call an ambulance, so she sat and prayed. She knows NOW that she
should have called someone. Anyway, we called the doctor this
morning, because it is possible that the aneurism is causing his
pain. If it bursts, it would be almost impossible to save him. The
doctor said he needed to be seen at the ER, so we decided we would
bring him back to Vanderbilt. The doctor felt like it would be okay
for him to make the trip.
He has had another CAT scan, blood tests and urine tests run. They
said it is possible that he has a urinary tract infection. We haven't
heard the results of the scan yet. Kristie just came out here and
said that he is grimacing from the pain right now. Mom says that
through this whole ordeal, Dad has never winced from pain. I don't
know what's wrong with Dad, but I'm glad we're here. Please pray for
Dad tonight.
Love
Renee
Friday, October 23, 2009
The bad news (why does there always have to be bad news?) is that his aneurism has grown. It was 7.8 centimeters wide and now it is 8.1 centimeters wide. That is almost a 5% increase in size. Right now, we are dealing only with the cancer; we just have to trust that the Lord knows what He is doing. Dad said tonight that "By His stripes we are healed", and "We have to believe that God will do what He says He will do." Dad was so upset last night; he wanted to be anointed by several preachers that he knows in Rockport. Kay did the next best thing: she called her friend Anthony, a very kind preacher who lives down the street from her. He and his wife came to their house at 8:30, prayed and anointed Dad. You DO have to believe that God is faithful to His Word, and we have asked for healing. My Dad has claimed God's promise, and now he is just waiting for God to follow through. One thing I have learned during my 48 years of being a preacher's kid: God ALWAYS follows through.
In my parent's house, the family room is right off the kitchen, but you must take two steps down to get to the family room. Dad's "throne" (his giant recliner) is right below those two steps, and those two small steps are Dad's biggest threat. There is no hand rail to hold onto when you step down. He goes up and down those steps during the night. He goes to sleep in his bed, but gets up after a few hours and finishes the night in his chair. Those two steps down that he takes to get to his chair are the reason why it is necessary for someone to stay with them. Tonight I held tight to his arm as we walked into the house, and when we got to the kitchen, I said, "Dad, you must not, under any circumstances, try to walk down those steps by yourself." He said, "I have no intention of going down those steps at all." He took two steps, reached out to grab the trim lining the door to the family room, went down the first step and tripped. I had not let go of his arm yet, so I caught him. I asked him about his previous statement of not going down those steps, and he reminded me that he HAD grabbed the door trim before he stepped down. There will be a hand rail put up tomorrow, but in the meantime, the dining room table will be moved to block the door. Mom really wants to stay there tonight without assistance. Kay and I discussed the options, and we think that as long as the stairs are not an issue, they will be able to manage a night alone.
We are praising the Lord tonight - not that we ever STOPPED praising the Lord - but tonight the praises are said with smiles on our faces and gratefulness in our hearts. Last night I asked for hope, and today, God followed through, just like He promised. Mom and Dad are home and good news is abundant in the Powell household tonight! None of this would have happened without prayer - our family's AND yours. Thank you so much for your prayers. I know that each of you are rejoicing with us right now. Finally............I get to share some REALLY good news!
Love,
Renee
Thursday, October 22, 2009
Mom just called. It's now 8:40PM and Dad just got up. He wants to call two of his friends and have them pray over him and anoint him. He got on the phone and told me of his plan. He said that he just had his breakfast and he wants to contact them. Even if the men could only meet in their kitchen without Dad being present, they could still pray and anoint Dad. Where two or more are gathered in His name, there I am also.................Thank you Lord for hope.
Renee
Wednesday, October 21, 2009
He was already in bed tonight at 8:00. Mom said that he was exhausted. He doesn't realize how little sleep he is getting. His main doctor said that he needs to see a urologist for all these nightly trips to the bathroom. I hope that she can refer him to one soon, for everyone's sake.
I don't have too much to tell you; Mom was worn out too, and she didn't give me a lot of information tonight. Hopefully they will be able to get some sleep.
Have a wonderful day tomorrow. Erin and I will be on another college visit Thursday, and then I am going to Nashville on Friday and Saturday.
Love,
Renee
Tuesday, October 20, 2009
The "sitter service" came today to talk to Mom, and Dad got extremely upset. He told Mom that he didn't need a sitter, he wasn't going to have a sitter, and if they got him a sitter he would leave that house. He went back to his bed and laid down, and Mom went in to check on him. She said he was so angry. He told her that his friend David Fisher would drive down to Nashville today, pick him up and take him home. Mom was crying because she just didn't know what to do or say. Dad went to sleep, and when he got up from his nap, he acted like nothing had ever happened. The lady from the sitter service was still there, and Dad sat and talked to her, but he had apparently forgotten why she was there. The good news is, Kay's friend Kelly will now be sitting with Dad all night on Tuesdays, Wednesdays and Thursdays (on the weeks that they are at Kay's house). Dad has known Kelly for several years, so hopefully he won't give her any grief. She is thrilled to have the job, and she starts TONIGHT! I know that the Lord worked this out; Kelly needs the job and Mom definitely needs the help. This is another BIG blessing from God, and I am praising the Lord for another answer to prayer.
Mom still doesn't know when we will get the results back from the MRI and CAT scan. We will all be "sitting on pins and needles" until we find out. Mom said that they won't see Dr. Reddy again until Monday (when it's time for him to be readmitted to the hospital), so we may be waiting several days.
I asked Mom tonight if there was anything she wanted me to say in the blog, and she said, "Please thank all the people for their prayers." I told her that I've been doing that for a long time. I believe that Dad is here today because of all the prayers that are sent up daily for him.
It's been a very long day for me, and I am heading to bed myself. Spending days looking at colleges is a vivid reminder that my last child will soon be gone, and that is another emotional issue that takes its toll on your psyche. I saw a comment that applies all to well to me: "You call it gray hairs...I call it stress highlights!". If my future continues on this path much longer, I am going to have to change the date of my hair appointment to cover up all these "stress highlights"!!!!!!!!!
Love,
Renee
Monday, October 19, 2009
Dad did not have to eat "scraps" tonight! Kay's Sunday school class is bringing them dinner every other night for the next two weeks. Kay has assured me that he has NEVER eaten scraps at her house! I told him last night that he didn't need to be eating scraps, and he told me that there was more truth than fiction in that statement!
Mom is making him take short walks around the neighborhood (doctor's orders). Apparently there is one air conditioner unit located down the street that has his name on it, because that is his resting spot. Mom tries to hurry him up, and he'll tell her that he will get up in a minute. He tried to cross the street and step up on the curb, but she wanted him to walk up a wheelchair ramp instead. He informed Mom that she was very bossy! I have a feeling that there are going to be quite a few more "bumps in the road" in their near future!
Dad didn't sleep as much today, so I am hoping that he sleeps more tonight. Kay went to bed early to get a few hours sleep before her "shift" starts. She is trying hard to make him comfortable, adjusting his pillows, etc. He told her tonight that she is not necessarily always right when she thinks she knows what he needs! He is definitely not mincing many words.
One of the men from our church, Don, volunteered to drive a van to Nashville, so some of the retired members could visit. He asked how many wanted to go, expecting around 6 to 8 people, but I understand that now 23 people are coming to visit! He has gone from driving one van to leading a caravan! Dad is so excited; he keeps thinking that they are visiting tomorrow. It will be a huge day for him, and I wish I could be there when all his friends walk in the door.
Tomorrow Dad is having his MRI and CAT scan done late in the afternoon. I don't know when we will have the results back. The MRI will tell us if the chemo is working, and the CAT scan will tell us if there have been any changes in the aneurism. Yes, the aneurism is still lurking in the background, as ominous as ever. I tend to forget that he has that aneurism - another serious health issue that must be dealt with sometime in the future. As with the cancer, the aneurism will be taken care of in God's time. God doesn't seem to be in a hurry right now.
Not much news to report; they're the same symptoms on a different day. We'll likely have many days like that.
May God bless,
Renee
Sunday, October 18, 2009
Dad really didn't need much watching today. He slept most of the time I was there. He would sit up for about 10 minutes, then go to bed for about 30 minutes. He repeated that cycle all afternoon. He told me that he hadn't slept since Monday, and he was just really tired. He is also very cold. He was dressed in flannel pants and a T shirt, a fleece jacket, and a sock hat; he was covered up with an afghan and another fleece blanket. I guess we are going to have to get used to seeing him having bad days. His body is filled with toxic liquids every other week, and they don't just target the cancer cells. His voice is high pitched and hollow again, but he doesn't say too much. He says his throat is sore, and he thinks that is due to the chemo.
He called his brother Paul (the barbecue specialist) and did his best to convince him that he needed some food. I listened to him tell Paul that he was not getting enough food to eat; he said that he was getting lots of scraps. He said that he didn't know how he could get his strength up if he wasn't getting enough food. Now I know that Mom and Kay are feeding him; he is just not used to having a diabetic menu, and he truly is hungry. I listened to him talk, and when he hung up the phone, I told him to put his shoes on; I was taking him out to dinner, and he wasn't going to eat scraps for supper! He decided he would like to eat at the Cracker Barrel, and off we went. That was the first time he has eaten out at a restaurant for many weeks. I told the restaurant "host" that we couldn't stay long because my dad was in the middle of chemo, and not feeling well. They treated Dad like he was a king! They took our order within two minutes, and they had out all our food in five minutes. Dad ate like he had not seen any food for 2 days. He didn't waste time talking; he kept a biscuit in one hand and a fork in the other, all the while trying to con Mom into letting him have some apple butter. The hostess even went out into the restaurant store to see if she could find him sugar-free apple butter that he could use at the table, but they didn't have any. It was just a joy to watch him eat. He didn't change his facial expressions - there were no smiles to accompany his full belly - but I knew that just being in a restaurant, feeling like he was getting "real" food, made Dad feel better.
The next few months are going to bring a lot of changes in Dad, and it's going to be really hard to watch him physically weaken with time. That will be the next step in this process of fighting the cancer. I guess my thought processes went from chemo to tumor shrinking to feeling better. I never factored in the cost of the chemo to Dad's physical body. It is going to be a long road for Dad, and for all of us that love him.
With heartfelt thanks to everyone,
Renee
Saturday, October 17, 2009
Dad had a strong voice during the day, but tonight he sounds "hollow" again. I'm sure it is because he is tired. He says that one reason he is tired is due to the fact that "Mom talks to people all night long - literally ALL NIGHT." He naps during the day, and when he wakes up, he thinks it is the middle of the night instead of the middle of the afternoon. He told me that she seems to talk to EVERYONE, regardless of what time it is! This is really frustrating Dad. I don't have an answer to that dilemma.
Tonight, Dad's nose has been bleeding just a little. Mom noticed a little blood outside his nose this morning, and she thinks she might have mentioned it to a nurse, but she isn't sure. Tonight, she noticed a little blood on the outside of his nose, and when he blew his nose, there was more blood. She called the nurses's station at the hospital, and they told her to try some Afrin decongestant spray to try and shrink the blood vessels in his nose. They think it might be due to a dry nose, but said if it gets worse, they are going to have to go to the emergency room. I don't think it's a dry nose; he sleeps with a CPAP machine, and it runs humidified air through his nose all night.
Clay is heading back home in the morning, and Mom and Dad will be by themselves until 6PM. I guess that will be the first time they've been "alone" since Dad started chemo. Mom says not to worry about them; they'll be fine. I know that she will have her hands full. You can't take your eyes off of him. He jumps out of his seat and is off in the wrong direction in a flash. He still doesn't realize that he is very unsteady and has to be careful. They will have a long afternoon tomorrow. Sundays are especially long for them anyway, because they aren't able to go to church. Mom really struggles with the lack of organized worship and fellowship with other people. She has ALWAYS said that if they missed church, the week to follow seemed very long. They haven't been to church in 7 weeks now.
I hope you have a wonderful Sunday service at YOUR church!
Love,
Renee
Friday, October 16, 2009
Kristie spent the day there, and she surprised Dad with a pizza (he did his best to get one yesterday but Mom the watchdog was there) and a cupcake from GiGi's Cupcakes. Kristie and I have passed this little bakery many times, and we finally went in on Tuesday. The cupcakes are absolutely beautiful. The icing on top of each cupcake is almost three inches tall. The flavors are really different - Red Velvet, Spumoni, Wedding Cake, Italian Cream Cake, you name it - they've got it - and all for only $3.00 per cupcake! If you buy one dozen cupcakes, they knock the price down to $2.75 per cupcake - a bargain, for sure! Anyway, Kristie and I walked out without buying any, but she went in today and bought three. Dad was allowed one-fourth of a cupcake (Mom's allotment), and his blood sugar only went up to 117 (though it was 160 tonight). Kristie said the smile on Dad's face was worth every cent! She said he laughed again all day. That's not to say that he didn't get confused and say some things that made no sense at all, but she said it was a great day!!!! I don't know why hearing that Dad had another great day makes me cry, but they are tears of happiness. We have waited so long to have some good days, and I am just overwhelmed with joy. I give all the glory to God, and I can't wait to see what He has planned next.
Dad is having another MRI of his brain and a CAT scan of his abdomen on Tuesday. Mom is not sure why they are checking out his abdomen, and I wasn't there, so I don't know either. We will find out then if the tumor has been shrinking. Mom thinks that she will be able to drive herself and Dad to Vandy that day- she says that she has to learn how to drive there sometime.
They were both ready for bed early tonight. She was giving me an update, and Dad asked her if she could POSSIBLY think of anything else to talk about! He was grumpy and ready for bed. Mom is hoping that tonight there will be no alarms. They are taking out the catheter before he goes home, so she knows she will not be getting any sleep after he leaves the hospital. She was hoping he could go home with some type of catheter, but the doctor says that it would be too easy for Dad to pick up an infection that way. They are hoping they might get to go home tomorrow, so I am praying for a smooth, quiet night.
Two happy days in a row are SUCH A BLESSING. I wish I could go back to Nashville tomorrow, but I have to work in the morning. I am so very thankful tonight for progress. That is truly an answer to prayer.
Have a wonderful weekend!
Love,
Renee